2012 Walk To Cure Psoriasis Philadelphia

by Christine Morris on April 4, 2012

Once again we are getting ready for the Walk to Cure Psoriasis in Philadelphia.  The girls are both excited to be the walk ambassadors once again and to help raise awareness for this disease. The walk raises funds for research, advocacy and educational programs that help the nearly 7.5 million Americans living with Psoriasis and Psoriatic Arthritis.

Katelyn is especially excited, as the walk lands on her birthday weekend.  Katelyn has asked to celebrate her birthday at the walk and I would love to make that wish come true.  As a mom I am really touched that a (soon to be) 12 year old would be so determined to get as many people as she can to the event and to collect donations in place of gifts!

The Philadelphia Walk To Cure Psoriasis is held each year at the Philadelphia Zoo.  This years walk is being help on Saturday April 21.

Please take a look at our walk site and consider joining our team or donating by clicking THIS LINK!

 

 

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Goodbye Summer – Hello Middle School

by Christine Morris on September 17, 2011

 

We ended the summer with our yearly trip to Knoebels Amusement Resort.  We have been traveling to Knoebels for 11 years, bringing friends or family with us each time.  We love it there!

Psor Sisters Knoebels Trip

We were safely in our caravan of 3 cars, 6 Adults and 6 children when we got news that there was an Earth Quake here on the East Coast.  That seemed to have started our crazy weather here.  Over the next few weeks we would add Hurricanes, Tornado’s and massive flooding to the end of summer festivities.  What a crazy ending to a great trip. Sadly, Knoebels was devastated by the latest flood but will bounce back, making next years trip even more meaningful!

School started on August 29th

I can’t believe that I now have a child in Middle School!  I am so excited for her but really don’t feel it can be possible.  Moving on to Middle School means a whole new school and lost more friends.  For a “Tween” with Psoriasis, I assumed this new environment would be good.

Katelyn has been in remission (other than her scalp) and doing really well. I was picturing a blank slate … Katelyn wasn’t.  The anxiety of starting Middle School was that her new teachers wouldn’t know about her psoriasis.  I think she always felt safe with those who knew and could understand when she was feeling self conscious or having discomfort.  Middle School is such a delicate time for a little girl – maybe I am more nervous than excited now!

For Carly, she’s such a big girl in 3rd Grade.  In our school 3rd grade opens you up to activities and playing instruments.  I now have two violinists in the family!  Carly absolutely LOVES her new teacher and has been keepingme busy with her many activities.

Before the weather gets too cold here on the East Coast, we are planning one last trip.  We plan to meet another Psoriasis Family at the Philadelphia Zoo in just a few weeks.  I am very excited to meet them but even more excited for the girls to meet them.  Kids always find such comfort in those they can relate to!

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Sun, Sand and Psoriasis

August 7, 2011

As summer continues, the girls are doing wonderful!  Right now we are enjoying a few small trips before heading back to school at the end of the month.  These little trips are a real danger for us.  No, not because kids can be accident prone (which is a whole other issue) but because the sun and [...]

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Flying Without Wings ….

July 21, 2011

Sometimes when you are behind, the best way to catch up is to start right where you are.  We started this website to share the girls story and help promote awareness for Psoariasis and Psoriatic arthritis but so much has changed since their diagnosis in 2007. In time I will update their story but for [...]

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The Summer of 2007:

June 4, 2011

The girls were 7 and 5 when Psoriasis entered our lives. I thought it was a small red bug bite on Katelyn’s leg when she returned from summer camp. Over the next few months she had more “Spots” and her sister began to develop them as well. We spent months searching for answers and nothing [...]

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Checking in with CHOP

June 25, 2008

Excerpt from My Diary On Sunday we go to Ocean City for Three days, then Friday we head to Washington, DC.  We are going to tour the White House and participate in the Walk To Cure Psoriasis. Last week we went back to CHOP. The girls will continue another 5 or more months on the [...]

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How do you put a Wig in a Bun?

June 16, 2008

Excerpt from My Diary: June 16, 2008 It’s recital week!  Carly wants to wear her wig but how do you put a wig in a bun and have it stay on? She will be devastated if she can’t look like the other girls! She wants her hair up in a bun so bad.  I hope [...]

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June 8, 2008

June 8, 2008

Excerpt from My Diary: June 08, 2008 Katelyn isn’t responding to the methotrexate.  She is withdrawing and really believes no other kids have psoriasis.

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Feeling Sappy

May 30, 2008

Excerpt from My Diary May 30, 2008 I went out to see Sex In The City and came home all sappy. I went into the girls rooms and kissed them goodnight.  I fed their fish and fixed Carly’s wig on her stand … then I wondered why? Why have both my girls been cursed with [...]

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Carly begins Methotrexate injections next week

April 2, 2008

Excerpt from my Diary: April 2, 2008 Carly will begin Methotrexate Treatments Next week.  Last Friday we went to Children’s Hospital Of Philadelphia. The girls have been patients here before but never in Dermatology.  Our Dermatologist spoke to a colleague of his who agreed to see us.  We met with a few doctors/nurses its all [...]

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